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  • NHS Digital announces patient de-identification software partnership

    NHS Digital announces patient de-identification software partnership

    Thursday, 05 July 2018 16:48
  • Over half of acute trusts are now using GP e-Referral Service

    Over half of acute trusts are now using GP e-Referral Service

    Thursday, 14 June 2018 14:29
  • NEWS app for sepsis scoring available

    NEWS app for sepsis scoring available

    Monday, 04 June 2018 09:58
  • NHS launches National Data Opt-Out facility

    NHS launches National Data Opt-Out facility

    Thursday, 31 May 2018 09:01
  • ePACT to be decommissioned on June 8 as ePACT2 takes over

    ePACT to be decommissioned on June 8 as ePACT2 takes over

    Tuesday, 29 May 2018 12:48

gp-dataJune 3 2015

Up to 700,000 people have not had their request to opt out of having their medical data shared with third parties, the House of Lords has heard.

In a debate on Monday, Baroness Ludford raised the issue asking what assessment the Government had made regarding a statement that the Health and Social Care Information Centre had been unable to process the opt outs.

For the Government, Baroness Chisholm of Owlpen said the number of personal objections to data sharing lodged with GP practices was unconfirmed, but HSCIC was trying to verify the number. “In the interim, for anybody who has registered a data-sharing objection with their GP, the HSCIC has taken the practical decision not to collect any identifiable GP data about that person for purposes beyond their own direct care,” she said.

However, Lady Ludford said the figure had come from the HSCIC chairman when he had addressed the Health Select Committee. “The admission was made that 700,000 people have objected to such data sharing, but the centre says that it is unable to implement or respect those objections,” she said.

“Will the Minister invite the Information Commissioner to investigate this worrying situation, which is undermining patient trust in NHS data sharing, to the detriment of legitimate uses for such data sharing?”

Lady Chisholm pointed out that people’s private identifiable health information cannot be shared unless there is a legal basis to do so, and that data will be held securely. It will be made available more widely “only in safe de-identified formats with crucial safeguards.”

In addition, pathfinder sites will be started to ensure the system is tested before being rolled out nationally, she added.

Baroness Walmsley asked whether the Government will have “a really high-quality public information programme that is much better than the last one” to inform patients when the roll-out commences. Previously, the information campaign had “left people not knowing what their rights were or how to opt out if that was what they wanted to do.”

She also asked: “Will the Government also do some research about the efficacy of the anonymity scheme for sexual health? Unless people have confidence that anonymity works, we are going to have a lot more than 700,000 of them opting out.”

Link:

Hansard: House of Lords question - Medical Data Sharing. June 1 2015   

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